Mclouth The fashion police likely would have been handing out citations right and left Friday at McLouth Elementary School.
It was Crazy Dress Day, and students dressed as wackily as they could. Some wore wigs; others clothes that didn’t match. One student even wore underwear on his head for the occasion.
This annual event focuses attention on Hunter syndrome, a form of MPS or mucopolysaccharidosis.
Seth Von Nostrand, a fourth-grader at MES, has the condition. It’s a disorder in which the body’s enzymes are unable to break down and recycle cell material.
His parents, Corey and Misty Von Nostrand, started the event, which each year takes place as close to May 15 as possible. May 15 is International MPS Awareness Day.
Each class views a video about the disorder, and the craziest-dressed student in each class receives a DVD about the disorder.
“It’s all about awareness,” Corey said. “You never what they’re going to be. Some might be doctors or geneticists.”
Right now, doctors expect Seth to live until he’s 13, but previously he was expected to live only to the age of 10. He just turned 10 in April.
Seth, who is profoundly deaf and reads lips, loves to play baseball. Although he’s not able to run and tires quickly, he does bat, which is his favorite part anyway. If he gets a hit, it is an automatic single, and someone pinch runs for him. An extra fielder also is used when Seth takes to defense.
Asked what he thought about people wearing the strange garb to school on Friday, a big grin spread across Seth’s face.
“They’re kind of funny,” he said.