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Ralliers want to preserve current system of providing long-term services to those with disabilities

This isn't about fear, it is about real life experiences people have with massive for profit health insurance companies. One Douglas County family endured the horror of KanCare with their daughter's medical services. Their daughter relies on oxygen, monitoring of oxygen levels, seizure medications, and needs to be fed special food through a tube. They did not have any problems before KanCare, but the company that supplied all of the needed equipment and food couldn't come to contract terms with the assigned KanCare health plan (Managed Care Organization) so all of the equipment was taken away and food was no longer supplied. Their daughter also went weeks without being able to get her seizure medications refilled after KanCare started. Without being able to properly monitor their child's oxygen levels, her lips and limbs turned blue. Without being able to order the special formula needed, the family had to water down her food formula to make it last. They made repeated calls for help to their daughter's KanCare health plan/MCO and nothing got resolved. It took several weeks of persistent calling and emailing to the MCO, the KanCare Ombudsman, to their local Senator who in turn contacted the Lt. Governor's office, and hiring an attorney to finally get back all of the medical equipment, supplies, medications, and food their daughter needs to stay alive. And it is the MEDICAL services that these companies have experience in already. If doing what they already know is such a nightmare, how much worse will it be to add in the daily living services that the KanCare health plans/MCOs know absolutely nothing about?

May 8, 2013 at 4:09 p.m. ( | suggest removal )

Editorial: Ongoing concern

I have heard from people who work for the state that items on the issues log are being marked as "resolved" when in fact they have not been resolved, but have just been referred to the insurance company for follow up. That's not exactly what I would call being transparent. Why is the state not enforcing the "stringent" payment guidelines? Why are pharmacists, doctor's offices, hospitals, etc... saying they have called the insurance companies multiple times for the same issue and are frustrated with being told it is being resolved and then nothing happens?

April 12, 2013 at 11:29 a.m. ( | suggest removal )

Editorial: Ongoing concern

The bottom line is that almost all of us can relate to the hassle, stress, and frustration of dealing with a health insurance company. Particularly when the insurance company decides to override our doctor's decision for a plan of treatment either with a flat out denial or a requirement to do a less effective treatment with greater side effects that our own doctor has determined is not in our best interest.

Now imagine that your health insurance company has total control over every activity in your day to day life. From the time you get up in the morning, to taking a shower, brushing your teeth, getting dressed, preparing your meals, going to work or trying to get a job, shopping for groceries or household supplies, socializing with your friends, going on a date, or visiting your relatives over the holidays, to the time you go to bed at night, your INSURANCE company will decide how much help you will get or won't get to make it through the day, day after day, for the rest of your life. I wouldn't want to live like that and I don't wish that on any one of my fellow citizens with intellectual disabilities. These are people who live and work right here in our community, our neighbors, our friends, and members of our family and they need all of US to speak up for them now. Tell Governor Brownback to keep insurance companies out of the personal lives of people with intellectual disabilities permanently!

April 12, 2013 at 10:49 a.m. ( | suggest removal )