Archive for Wednesday, March 11, 1998

TO HELP BATTLE DISEASE

March 11, 1998

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— A Baldwin woman wants people to ``rock'' to raise money for the Cystic Fibrosis Foundation.

Marilyn Hanny has seen the effects of cystic fibrosis as her nephew and his wife raise two daughters with the disease, and now she is giving back to the foundation that helped her family.

Hanny, Baldwin, is organizing a five-hour rocking marathon for the Cystic Fibrosis Foundation on April 25 and is asking for volunteers. Her nephew, Mike Forbes, and his wife, Jennifer, Parsons, have 8-year-old and 4-year-old daughters who were born with cystic fibrosis.

``I have 100 sponsor sheets and 20 volunteers so far,'' Hanny said. ``If I could get 100 volunteers who collect $100 each, that would be just great. I'd be happy with $5,000.''

Cystic fibrosis is a hereditary disease affecting the exocrine glands, leading to severe respiratory complications.

The fund-raiser will be at St. Anne's Hall at the Annunciation Catholic Church, Baldwin. Hanny said family members can ``tag team'' during the marathon, allowing parents and children to be involved. The fund-raiser will be from 7 p.m. to midnight.

``We're going to have rocking chairs and rock 'n' roll music,'' said Hanny, who teaches water recreation classes at Brandon Woods Retirement Community, Lawrence. ``You can rock either way you want to rock.''

Hanny said the foundation has been working on correcting the defective gene that causes cystic fibrosis. The work has been successful in laboratory situations but not with people who have the disease.

``They thought they'd have a cure by now through gene therapy,'' she said. ``They are making progress very quickly with their treatment.''

Cystic fibrosis is the leading genetic killer of children and young adults in the United States.

For more information, call Hanny at (785) 594-3170.

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